You check your oil, have you checked your PSA lately?

Of all the threads I’ve started on here this is by far the most difficult I’ve written. The reason? I have prostate cancer. Well, actually I have Metastasized Prostate Cancer.

About 2 months ago a long time friend of mine that I’ve met for coffee every Thursday for the past 25 or so years told me he had prostate cancer and was going to have his prostate removed. I’m 73 and he’s several years younger than I am. He asked me when the last time I had my PSA checked and I couldn’t honestly tell him.

A quick call to my local VA medical center disclosed that I had my last PSA test done when I was 70. I asked them why they didn’t do it every year when I had my physical done and they hid behind the recommendation of the CDC that says something about not doing them for men over 70. I asked them why and they said they didn’t know, that’s just what the CDC recommends.

Quite frankly, I feel like they let me down. I assumed (Yeah, I know…) they did that every year as part of my blood work. Had they told me they didn’t routinely screen for PSA after a certain age I’d have requested the test be done.

So, I had blood drawn and had a PSA test done and the results were sky high. High enough that they rushed through an approval for the VA to pick up the tab for me to see a urologist. I did, they did another PSA test and confirmed the reading and scheduled me for a CT Scan and MRI so they could determine the extent of the spread of the cancer cells.

So now that we know the cancer cells have spread throughout my body, attaching itself to bones at several locations in this otherwise perfect male specimen, they scheduled me to see an Oncologist.

So here I sit, writing this thread which took several beers before I could bring myself to do it. I’m facing 6 months of chemo treatments, one every 3 weeks. Nobody is predicting this is going to end my life early, in fact the only thing they are predicting at this point is that at the end of the 6 months they’ll reassess how things are going and likely put me on another type of treatment.

The odd thing is that I have ZERO symptoms. No pain, no joint stiffness, nothing. I’m sure after I start the chemo I’ll go through the usual nausea, maybe some vomiting, possible hair loss, but nobody can even say that with any certainty.

The chemo drug(s) are a type of poison designed to kill the cancer cells. That’s the good thing. The bad thing is it’s still a poison and it may wreak havoc on me.

One thing is for certain: I am NOT going to let this kick my butt either mentally or physically. I look at this as a speed bump. I’m going to get over it then get my life back up to speed. There’s just too damn many things I have yet to accomplish in my life.

So, back to the question I posed in the title: When was the last time you had your PSA tested? Don’t let them tell you that because you’ve reached a certain age you don’t need your PSA tested. Bull crap. Get it done. Get it done this spring, and preferably before the next time you check the oil in your boat.

I didn’t write this thread looking for sympathy. That’s now how I roll. I wrote it with the hopes that some of you old farts out there who don’t know when you last had it tested will get your butt in gear and go see your doctor.

Smooth waters, light winds and fair skies.

ever wonder where the incentive to keep us old timers alive past our prime has gone.

That sucks. Not sure how VA services work or what your insurance situation is, but my best advice is to get a second opinion if you can. Lots of other treatment options out there besides chemo that are easier to deal with. Seattle Cancer Care Alliance isn’t too far from you and I feel like I’m well taken care of there. Feel free to PM me.

Truly sorry to hear that, I hope ever improving treatments will bring good results. It`s fine advice encouraging others to get tested.

A PSA test is available here as part of a general routine bloods check. Drs seek your agreement to the test, not sure why,perhaps because of a risk of false positives and resultant anxiety. I see it as an indicator for further testing, not a diagnosis, and say yes. My GP uses a no patient contribution Medicare funded pathology provider.

A younger friend was alerted by his result and surgery was possible, before a breakout occurred. I hope your experience inspires others to get themselves tested.

False positives. It has been about eight years now since I had a biopsy performed on my prostate which came up negative. A biopsy was indicated by a higher than "normal" PSA number. My number contniues to hover around that original test result so, apparently, and according to my urologist, my PSA number is normal for me. However, if it were to go up then time to worry. Still, this is a good reminder to get a physical and some bloodwork. I am 69 years old.

BruceK said:

Truly sorry to hear that, I hope ever improving treatments will bring good results. It`s fine advice encouraging others to get tested.

A PSA test is available here as part of a general routine bloods check. Drs seek your agreement to the test, not sure why,perhaps because of a risk of false positives and resultant anxiety. I see it as an indicator for further testing, not a diagnosis, and say yes. My GP uses a no patient contribution Medicare funded pathology provider.

A younger friend was alerted by his result and surgery was possible, before a breakout occurred. I hope your experience inspires others to get themselves tested.

Click to expand...

Greetings,
Sorry to hear. Thanks for the PSA about the PSA. Like a lot of things in life it's a bad news/good news thing BUT the good news outweighs the bad IMO.

Bad news you tested positive.

Good news is you now know. Prostate cancer is one of the easier types to cure. In spite of the "side effects" of chemo there is an excellent drug for treating the nausea, mon and it's pretty well no co$t...Just think. A new hobby, gardening!









Sending you good vibes...mon..

Sorry to hear about your prostate cancer. I had my prostate removed about 15 years ago during the period when PSA tests were done routinely every year, and I have been cancer free ever since.

But lots and lots of prostates were removed over the years, maybe including mine that would have been fine if left alone. That is why the CDC recommends and I am sure did not do it casually, not to do routine PSA exams anymore. It is a crap shoot for sure: If PSA is high, do the surgery and face quality of life reduction or do nothing and bet that you will be fine. The CDC apparently determined that on balance not doing routine PSAs was better than doing unnecessary treatment. The rub is that you never know if you will be the one like yourself who would have been helped by early detection and treatment.

And FWIW even if detected at the age of 70 which apparently was not for you, CDC recommends no treatment, because you will die from something else than prostate cancer.

But you are you and now have to deal with your condition as it is. Metastatic prostate cancer is serious and tens of thousands die each year from it.

You may feel fine but if it has spread beyond your prostate and nearby organs you are in a serious situation now. I am a little puzzled by the recommendation to start chemotherapy. Usually the treatment for someone in your condition is hormone therapy- reduce testosterone in your system because testosterone is necessary for cancerous cell growth. It works for a lot of people, but unfortunately not for all.

I would recommend joining a prostate cancer support group online. Google it. The one I joined 15 years ago was an email server which I am sure has gone the way of old technology, but others certainly have taken its place. The support group will further explain the issues raised above.

Good luck and hang in there.

David

Sorry to hear about your prostate cancer. I also had no symptoms, I had my prostate removed 8 years ago. PSA was 12 therefore I had a biopsy it revealed 30% cancer in the prostrate. With the hope that if we cut it out before the cancer spread to the rest of my body I had the operation. PSA has been zero ever since. I tried but could not find a support group here in Little River. .
Keep thinking positively your mental state is the hardest part.
Cliff

Wow, sorry about your prostate issue.

I get a PSA test yearly since my dad had prostate cancer.

10 years ago my PSA went up quickly. Went to an Urologist who performed a 12 sample biopsy that didn't find anything. I got an infection from the biopsy that took months to heal. The Urologist was sure my prostate was cancerous and wanted to do another 12 snip biopsy after I healed. I told my Doctor no way would I go back to the quack. He sent me to another Urologist who used a pee pee camera to look at the prostate. He found a golf ball sized tumor on the outside of my prostate.

The Urologist removed the tumor through my urethra, had it tested and found it not cancerous. My PSA dropped to normal within 6 months.

Moral of the story, GET A SECOND OPINION!

Just one comment. My bride is an oncology nurse and they have made amazing strides forward in dealing with the side effects of the medications. A positive attitude, like you have with an I will beat this crap lean, will work wonders in your success. You got this!

John

I totally understand what Mike is going through. 11.5 years ago my PSA was 10.5. I was scheduled to have a robot take my prostate out. My sister-in-law who is an RN told me about the new procedure called "Proton Therapy." At that time there was only 5 centers in the USA. I went to UAF Jacksonville for the 80 day treatment. Other than a biopsy there is no surgery.

As Mike knows the only way to be 100% sure if you have prostate cancer is to get a biopsy of the prostate.

I have now been cancer free for over 11 years. My PSA went from 10.5 to 0.02.

I wish you well my friend and if you or Tina need anything, you have my number.

https://www.floridaproton.org/

I get a PSA every year from Kaiser, and I just turned 84.

Thanks all for the good wishes and advice. For me the hardest part in the beginning was to actually say the word Cancer. Once I found I could confront it and say it my attitude changed and I decided to kick its butt rather than let it kick my butt. My new motto is now:

Throttles Forward and don't look back.

Seattle Cancer Care Alliance isn’t too far from you and I feel like I’m well taken care of there. We're fortunate to have the Tri Cities Cancer Center here in town. They're hooked up with the Fred Hutchinson Cancer Center in Seattle which I believe it part of the Seattle Cancer Care Alliance, and they're also hooked up with the UW Medical Center. It's reassuring that all the cancer fighters are linked together so you can get the best treatment.

I am a little puzzled by the recommendation to start chemotherapy. Usually the treatment for someone in your condition is hormone therapy- reduce testosterone in your system because testosterone is necessary for cancerous cell growth. It works for a lot of people, but unfortunately not for all. I'm getting that hormone therapy concurrent with the chemo. I got my first shot about 2 weeks ago and will get that every 3 months, likely for the rest of my life. The doc said I might experience some of the things women get when they go through menopause-hot flashes, increased breast size, etc. None of that happened and it's like they gave me a shot of water.

Right now the most difficult thing is waiting for the first chemo treatment on 3/10. I don't know what the after effects will be but I'm not going to let that stop me. I'll probably be tired and nauseaus for a day or two but I can handle that. Six months of chemo means about 7 treatments. If I'm sick for 2-3 days after each treatment, hell, I can do that standing on my head.

So thanks for all the advice, prayers and kind thoughts. I do appreciate all of them. I'm not going to change my lifestyle except for a couple of days after each chemo treatment.

Oh, and Mr. RTF, we have two legal pot stores right within a few miles of us that have a LOT of CBD products to choose from. We've already made one trip there and just might have to do another drive by soon.

Mike

Greetings,
Mr. GFC. Ummm...You're doing it wrong.

It is said here that many men die with prostate cancer but not of prostate cancer.
However, it is gets out and away, the battle begins, just as it has here.

It is estimated and revealed through autospies that approximately 1/3rd of males that die had prostate cancer and they and their doctor did not know it. They died of something else. Some prostate cancers can drag on and on and on.

I just went through a lymphoma scare and learned that there is, to use a slang, old farts lymphoma that is very slow and the person usually dies from something else.

I know you aren't looking for sympathy GFC, but how about some empathy.

I have it done every year. This past annual physical my doctor told me she had forgotten to add it to the blood work. I told her to write a draw just for that and I went back again. It was fine. Every year I get the full work up blood report which lists the acceptable ranges and what is out of range if anything. I am anal about scanning it and asking questions.

Good luck with the treatment. If you feel up to it share your experiences as you go along - you may save others on here from going through this - or even a life.

We are with you.

menzies said:

We are with you.

Click to expand...

Thanks for the kind words. I truly appreciate it.

I have given some thought to posting about my experience with the chemo. I haven't decided yet. If it gets one of you old farts in for a PSA test I suppose it would be worth it.

Wifey B: I think you've done a huge public service to the members here in a way only one going through what you are could do. The thing that angers me is they didn't let you make the choice on the test. I know the reasons they choose not to, but it should be an individual's decision, not doctor's playing God. They do this on many tests. No PSA because you're old and makes no sense to do the surgery, but yet we all know many much older who have lived another 15 years post surgery. Too many false positives, then do additional screening or at least check the rest of the body. It's patients rights. They do the same thing on women with mammograms and pap smears and change the rules. They do it on both sexes with colonoscopies. Doctors should inform and ask what we want to do. It's like treatment options, it's our lives to decide. I know you'll fight for the best possible outcome you can have and will have family and friends beside you and wish you the best. You said no sympathy and I don't meet the physical requirements for empathy, but I share you concerns on testing.

Good luck moving forward on this GFC. Based upon your previous advice I see my urologist March 2nd. PSA numbers are fine but as with most old men my prostate is enlarged and needs a look see every now and then.

Thanks for posting. All us guys need a reminder and your openness is laudable.

Thanks Tom. The whole notion behind this thread was to get guys to call their doc for a PSA test. I'm really pissed at my VA Physicians Assistant for not telling me they didn't routinely do a PSA test. Had she told me, I'd have requested that it be done. By not telling me, like WifeyB said, she was playing God and I don't like that.

GFC said:

Thanks Tom. The whole notion behind this thread was to get guys to call their doc for a PSA test. I'm really pissed at my VA Physicians Assistant for not telling me they didn't routinely do a PSA test. Had she told me, I'd have requested that it be done. By not telling me, like WifeyB said, she was playing God and I don't like that.

Click to expand...

Unfortunately, the VA's attitude toward vets is that you are too old, will die of old age and it would spend too much money to send you to Proton Therapy.


Is the above true? I worked for the VA in my mid-way though my career.

A difficult message to write, to be sure. You've got a great attitude going into the treatment and that can be a major factor in success. You've got this. If you're up to it, keep us informed on how it's going and know that we're all in your corner. Thanks for the public service reminder, too.

GFC said:

Thanks Tom. The whole notion behind this thread was to get guys to call their doc for a PSA test. I'm really pissed at my VA Physicians Assistant for not telling me they didn't routinely do a PSA test. Had she told me, I'd have requested that it be done. By not telling me, like WifeyB said, she was playing God and I don't like that.

Click to expand...

Now, as the other B, I'll chime in. We don't know until all the choices are laid before us. I have a long time friend who told me about three years ago she didn't want to get old, as in she'd prefer to die first. She got diagnosed last year with a terminal condition and she's doing everything she can, even going to a quack treatment center in Mexico for long periods because she's been told at Mayo Clinic they can't do anything for her.

If you're 70 and feeling good overall, active, then you think of many years ahead and a PSA making a lot of sense. If you're 70 and every organ is deserting you, then you likely don't. As I look and think ahead, I want to make my medical decisions based on the most possible knowledge.

Doctors are told they run too many labs. I don't buy that. I know a man in his late 60's who has a doctor who comes to his home and does labs every month or two. Well, this patient suddenly was doing much poorer. Thought it was his lung condition to to pulmonologist and CT's and VQ's. Found nothing. To his Cardiologist for an Echo. Nothing. But, about that time the primary ran labs and a huge change in his NT-proBNP. Diagnosis simple, Congestive Heart Failure. Treatment-Lasix. Result-Immediate Improvement. The experts were baffled but the over testing primary had the information.

The cost to running a PSA is nearly nothing. Can the information obtained be misused? Of course, but trust the doctor and patient to then communicate and let the patient make his own decision. Sadly, in your case, it became an easy decision when you gathered more information. However, because you gathered the information you can treat it while still in a treatable stage. I wish you strength and the best of luck.

I support your purpose with a warning to all. You are each your own Medical Manager. Not your doctor or doctors. You. You should get a copy of every lab and every test and review them all and if there is anything you don't understand then find out. PSA? When's the last time your liver enzymes were checked? What about rheumatoid factor? Also, build a history. Look for changes. Has your A1C been checked? That's now the standard screening for diabetes. It's important to know not just the norms of the tests, but your norms. You could end up in urgent care or an ER and they panic over perhaps your creatinine running 1.8 but you know from your history it's been at that level now for 15 years and your Nephrologist isn't worried. Just no iodine dye, so you can't have a CT with contrast. And if something about your body doesn't feel right, persist until someone addresses it. You know how you feel and don't let anyone tell you otherwise.

Alaskan Sea-Duction said:

Unfortunately, the VA's attitude toward vets is that you are too old, will die of old age and it would spend too much money to send you to Proton Therapy.


Is the above true? I worked for the VA in my mid-way though my career.

Click to expand...

There are many general attitudes toward Prostate. I knew a gentleman years ago, was in his upper 60's. PSA was high. Doctor told him at his age he wouldn't do anything as likely wouldn't have a problem in his lifetime, in the next ten years. He told the doctor he intended to live to 95 (did run in family to live long) and he wanted the surgery. Was it necessary? Medically I can't answer, but to him it absolutely was and he was happy he had it, even knowing he perhaps would have been fine without it. The surgery brought him peace of mind. Apparently VA Doctors are in the "Ignorance is Bliss" Mindset.

One other point.

Doctors have long believed that the finger probe of the prostate is more accurate than the PSA. So if the VA do not want to do/pay for the blood test, why on earth wouldn't the doctor do the quick and cheap finger test?

MV Wanderlust said:

A difficult message to write, to be sure. You've got a great attitude going into the treatment and that can be a major factor in success. You've got this. If you're up to it, keep us informed on how it's going and know that we're all in your corner. Thanks for the public service reminder, too.

Click to expand...

A good POSITIVE message!

Finger test is a lot differant than a PSA. If your PSA is high, next move is a biopsy.

menzies said:

One other point.

Doctors have long believed that the finger probe of the prostate is more accurate than the PSA. So if the VA do not want to do/pay for the blood test, why on earth wouldn't the doctor do the quick and cheap finger test?

Click to expand...

With the VA, it's not the cost of the test, their excuse for not doing a routine PSA test is that the CDC says it's not required for men over 70. OK, I can buy that, maybe it's not required but I believe I should be told they won't automatically do one and give me the option of deciding if I want one or not.

GFC said:

With the VA, it's not the cost of the test, their excuse for not doing a routine PSA test is that the CDC says it's not required for men over 70. OK, I can buy that, maybe it's not required but I believe I should be told they won't automatically do one and give me the option of deciding if I want one or not.

Click to expand...

You can`t be the only one to have a bad experience in the face of someone following the CDC. Could it be economic based rather than best clinical advice? Be good to have the option.
Here, turn 50 and every 2 years until 74 you get a fecal blood test kit to use and mail back,no charge. If blood present, more testing is advised. Govt figures saves lives and $ by early treatment. Seems to me PSA testing works along similar lines.
Why the cutoff at 70 (VA) and 74(bowel test here) respectively? Clinical experience? Economics? Good practice, or not? There are questions, but do you spend valuable time and thought on that when good treatment and a good attitude to treatment is paramount.